This is a website for SAPHO Syndrome (including CRMO and PPHS) primarily for the purposes of support & collaboration, but we hope it will also include significant information resources over time.
For now, you probably want to join us on the forums where you can find discussions about SAPHO, and links to some other useful resources.
Please feel free to join us and come back as often as you like. This is a community comprised of like minded patients, so please do comment or answer any questions you feel you can relate to. We are all here to support and help each other.
- Stefan (stefan@saphosyndrome.org)